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Johnstown baby with rare disorder returns home
Posted at: 10/05/2012 4:51 PM
| Updated at: 10/05/2012 5:31 PM
By: WNYT Staff
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JOHNSTOWN - A Johnstown baby named Jax who suffers from Epidermolysis Bullosa is coming home.
Epidermolysis Bullosa is a disorder that causes his skin to blister at the slightest touch.
The one-year-old is being treated at the University of Minnesota as part of a clinical trial: undergoing chemo therapy, radiation and a bone marrow - stem cell transplant.
His grandmother tells us, after some setbacks, he's finally doing well enough to come home for a week and will arrive in the Capital District late Friday.
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