The Spina Bifida Association of New York State (SBANYS) is hosting its annual ‘Dare to Dream’ gala and celebrating 30 years since a group of parents in the Capital Region got together to found the organization to provide support to people with the birth defect.

NewsChannel 13’s Stella Porter is serving as honorary chair and emcee for the event. The gala is taking place on Saturday, November 18 at the Hilton Garden Inn in Troy.

SBANYS Executive Director Julia Duff joined NewsChannel 13 Live at Noon to talk more about the gala.

Spina Bifida is a birth defect that occurs in the first 28 days of pregnancy when the spinal column does not close or form properly, leaving nerves exposed and resulting in damage to the spinal cord. SBANYS provides support so that people living with the complex condition can thrive.

The organization continues to provide support, education, and programming 30 years later to individuals living with Spina Bifida, their caregivers and their professional network.

This includes support groups, scholarships, care packages and webinars for those impacted by Spina Bifida. SBANYS also collaborates with local medical providers and hospitals like Albany Med Health System to ensure patients are receiving comprehensive coordinated care across their lifespans. 

Tickets for the gala are on sale now.